Chaitrali Gore
Chaitrali Gore

MRI brain in this child with spastic cerebral palsy showed gross hypoplasia of the body and genu of the corpus callosum; generalized atrophy of the left cerebral hemisphere; ventriculomegaly.  An EEG done showed West Syndrome.  Chaitrali could not hold head or creep or sit at 2 ½ years when she came to Dr. Vasa.

Following is an account of observation made by Chaitrali's parents over the years while being treated with VASA CONCEPT

2010

  • Nov - Dec

    Visible Progress

    • She has started responding very well socially. If someone is trying to play with her, she smiles. She also smiles when her mother enters the room and she notices that.
    • She gets scared by loud noise. Earlier she used to fear too much and immediately started crying while now the intensity has reduced. Now she still gets scared, but doesn’t cry immediately. She was also getting scared of darkness earlier which she has slightly got used to now.
    • She gets excited by her favorite toys or her favorite sounds. She shows her excitement by fast kicking of legs and sometimes making sounds orally.
    • She has started making lot of sounds when there are people around her. The sounds can be called as babbles like ‘boo’, ‘ooh’, ‘aga’, etc.
    • She tries to lift her head when kept on paatala and most of the times is successful in doing so, however she can’t hold it for long. She tries to follow rattles when kept on paatlaa by lifting her head and turning head as the rattle moves.
    • Her urination frequency has increased and stools are regular.
    • Chaitrali has now got used to sounds. Earlier she used to get startled and scared after hearing a loud noise. Some times she used to cry also. Now she doesn’t cry. For some sounds she doesn’t get scared also.
    • Her eating is slowly improving. Earlier she used to spill over lot of food and her bib used to get dirty. Now she doesn’t spit much, and eats her food well.
    • We can feel formation of muscles at some places. Earlier it used to be soft part where now we can feel muscles (chest, biceps, etc.).
    • Sometimes she seems to follow what we are telling her. Like a few times she lifts her hands when we tell her to do so, or she opens her fist when we tell her to do that. Though this is very rare and not every time, it may be that it is happening by fluke; but she has done this 2-3 times in these 10 ten days.
    • Chaitrali tries a lot to sit by her own and hold her head. Even when we are holding her or when she is sitting in bean bag, she tries to do this.
    • She now doesn’t like to be alone or neglected. If we are not playing attention to her, she attracts our attention by making sounds.
    • She has started watching TV, though it is only for few minutes that she looks at the screen, but it is as if she is following what is happening there.
    • She enjoys going out, so she smiles when we put on the diapers and change her clothes for taking her out.
    • She responds to calling her name by immediately looking in that direction.
    • Her eating has improved a lot. She now takes 15-25 min to eat as compared to 45-75 min taken earlier (before starting treatment).
    • When we keep her in prone position, she herself tries to take her feet forward in crawling position. This I felt is a great improvement because till now she has not done any movements by herself.
    • While eating, she opens mouth by herself when I take the spoon near her mouth. Earlier I had to force it open by stimulating it many times.  She knows when I take her for feeding and wants her food immediately. Keeps opening her mouth till the time I feed her.
    • She has started lifting her hand to say bye to some people, though this is very rare.

2011

  • Jan - June

    • Visible Progress

    • She has started sitting in both namaaz position and normally with hand support for 5-7 min.
    • Her visual focusing has improved a lot. Earlier she wouldn’t look at the camera ever while clicking photo. Now every time we take camera in front of her, she looks at the camera. We can see this in the video also.
    • She has started holding objects in her hand if we give it in her hands. This is for a small duration (10-15 sec). After that she opens her fingers.
    • She has started making lots of variety of sounds. Also she can now differentiate between hunger and thirst. If she is hungry, she makes chewing noise and if she is thirsty, she keeps taking out her tongue.
    • She has started to show what all she can remember. She knows there is a fly toy on the fridge so she keeps looking there while doing exercise. She can look at her grand-mother, mother if asked where they are.
    • She has started doing doggy to cobra exercise by herself. It is very pleasing as this is the first time she is doing an activity by herself.
    • Her communication has improved a lot. She smiles when she likes something, can express when she is hungry or thirsty and she can also express when she is going to pass motions.
    • She has started holding objects by herself quite a few times. We have hung rattle in front of her bean bag. She catches it sometimes, sometimes my specs/clothes, etc.
    • She can now laugh with small sound and also tries to express by smiling. She can understand when we appreciate her and smiles when we clap for her.
  • Jul - Dec

     Visible Progress

    • She has started to enjoy reading her the story books/ any other type of books. She listens intently when we are reading her a book.
    • She is very attached to her father. When her father came home after long duration (20 days), she wanted all of his attention. When he talks to other people in front of her like his friends, she doesn’t like it and starts screaming. Even if he holds her, she wants him to talk to only her.
    • Chaitrali has tears now when she cries. Earlier she didn’t get tears every time when she cried. But now whenever she cries, she has tears rolling down from her eyes. I thought it is a good sign as this is also considered a developmental milestone.
    • She can now turn back and look at anyone standing behind her. Earlier she used to always get stiff when she tried doing this. Now she can look back without getting stiff.
    • She enjoys when we show her different pictures. She even smiles when we read her ABCD book.
    • Her head holding has improved a lot. Now her head doesn’t fall down so frequently as earlier.
    • She enjoys talking on telephone and makes sound while someone is talking to her. She laughs a lot that time.
    • She now makes sound while laughing. She enjoys her toys and playing now. She understands playing peek-a-boo and laughs.
    • Her eyes have become a lot more expressive. She listens intently when we talk to her and there is an expression of anger when we scold her.
    • The diameter of her neck has increased for the first time. I realized this while tying the bib to feed her.
    • She enjoys watching tv more now. She likes the songs and dances, but the moment the song is finished, and advertisement comes, she gets irritated.
    • Chaitrali has started recognizing people a lot now. She smiles immediately when a known person comes near her like her grandma, mother, my maid, etc. If someone is unknown she will keep looking curiously as to who is this new person.
    • Her gripping has increased. She continuously tries to hold something or the other n when she succeeds, she laughs by looking at the object.
    • Her skin color has slightly changed from yellowish to pinkish.
    • Her head circumference has increased from 38.5cm to 39.5cm.
    • While banging hands on floor on ball, she keeps her hands open mostly, but while touching down she can’t touch the palm of the hand to floor.
    • Chaitrali has started to show liking for taste, music and toys. Only for few songs only she listens carefully. Also when I give her taste of chocolate and then show it again, she smiles. For some toys, she smiles when we show her those toys.
    • She has started smiling when she sees that everyone around her is smiling. She has even started to show her dislike sometimes by pretending to cry / throwing herself back. 

2012

  • Jan - June

    • Visible Progress

    • She has started passing gases intermittently.
    • er eating has drastically improved and I have now stopped tying bib while feeding her.
    • Chaitrali can now sit by herself for 30 sec (max) without tying patti to her hands.
    • She now cries with lesser intensity for the fist opening exercise. So we have started doing it 2-3 times a day.
    • She now knows certain things by words like cards, book, food, etc.  She likes certain songs and laughs when that song is played on TV.
    • Her bonding with all of us (mother, father and grandmother) has grown thicker. She now smiles if she sees any of us after long duration. She wants us to give attention to her if this happens.
    • If someone is watching a tv program and not talking to her, she doesn’t like it. She always wants songs to be played on tv and keeps screaming till we put on the songs on tv. She doesn’t let us watch anything else on tv.
    • She now responds to some sounds made by us like when we tell her to look at us, she looks where we are. But this happens only with her mother or father calling, she doesn’t respond to anyone else.
    • She likes to see other cars moving when we take her out. She laughs out loud or makes sound when any car / bike / cycle pass us when we go out for a walk.
    • She likes water related things such as fountain or sprinklers. Earlier she used to not realize this. She also likes when we pour water from bottle to glass or from one glass to the other.
    • For the first time after starting the treatment, Chaitrali slept at someone else’s house when we had not slept. She would require us to sleep with her and lights off. Last Saturday was the first time when she slept at our friend’s home when we were still talking.
    • She has started to respond orally sometimes. When I am talking to her and ask some questions, she tries to respond to them orally by making some sounds.
    • When we ask her if she is feeling sleepy at night, she says yes by closing her eyes for short duration.  If she is not sleepy, she won’t close eyes and smiles instead.
    • She sits in namaj by taking support of her hands without any external support, but after sometime she tries to get up from namaj and go in horse so she falls.
    • Her hand opening has improved. She now keeps her left hand mostly open but right hand still closes at some times.
    • Her head holding has improved slightly. Now while doing most of the exercises, she looks up herself.
    • She can go to sleep alone now in afternoon, but requires we to be near her at night.

Note: This website is currently under development.

This site does not provide medical advice, diagnosis or treatment. The contents of the website, such as text, graphics, images, videos, and other material contained on the website ("Content") are for informational purposes only. The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on www.vasaconceptforcerebralpalsy.com.

If you think you may have a medical emergency, call your doctor immediately. This website / VASA CONCEPT does not recommend or endorse any specific tests, physicians, products, procedures, opinions, or other information that may be mentioned on the Site. Reliance on any information provided by this website, employees and associates of this site, others appearing on the Site at the invitation of www.vasaconceptforcerebralpalsy.com, or other visitors to the Site is solely at your own risk.

The Site and the Content are provided on an "as is" basis.