Vivan Ghadiali
Vivan Ghadiali

MRI showed evidence of hypomyelination.  The amount of myelin deposited in the paraventricular cerebral white matter, internal capsules and corpus callosum is less than expected for the given gestational age of 7 months.  He began his treatment with Vasa Concept at age 2; he had severe hypotonia then.

Vivan - before VASA CONCEPT

Vivan had a delayed developmental milestones and a very hypotonic body.  He was unable to recognize and remember any family members.  He would turn blank frequently.  He was not able to sit or do any activity at age of 2.

Before joining Dr. Vasa, Vivan was a mold of clay with no muscle tone at all. There was no firm shape and structure to the body; the spine was scoliosed; he was not able to identify family members including parents, his neck would constantly keep moving, he had difficulty concentrating at any object, had no bowel and bladder control, frightening upward rolling of his eyeballs very often. He could sit independently for few seconds, but would fall frequently so had to be kept under observation.

Following is an account of observation made by Vivan's parents over the years while being treated with VASA CONCEPT

2010

  • Jun - Dec

    Observations

    • He keeps on laughing for no reason.
    • The tone of his back muscles is better.
    • He moved about one foot ahead in lying down position with the help of his belles.
    • Vivan's trunk control is much better. His body has become more symmetrical.
    • Now, he shouts a lot when he passes urine.
    • Hand movement has improved a lot.
    • Babbling is also increased.
    • He gets down from the bean bag if legs are touching the floors.
    • He responses a lot to his mother.
    • He has started throwing balls.
    • He tries to get up from sleeping position. At times, he succeeds.
    • While sleeping in prone position, he comes in frog position. Then with the support of his hands he comes to sitting position (Namaz).
    • He has active interaction with us as compared to no reactions from him during our efforts to work with him.
    • Drooling is little less.
    • He shouts a lot nowadays.
    • When we are doing something on the floor like taking the meal, chopping vegetable, fruits or leafy vegetables, somebody has to hold him; otherwise he pulls everything & doesn't allow us to work.
    • He moves fast in sitting position.
    • He gets down from the bean bag on his own. He comes on his elbow in supine position.

    While sleeping in prone position, he comes in frog position. Then with the support of his hands he comes to sitting position (Namaz).

2011

  • Jan - Jun

    Visible Progress

    • The shape of his leg muscles are better.
    • There is improvement in his understanding. At times he gives proper answer when asked something.
    • We had been to Bangalore. We saw Zoo, Science Center, Botanical Garden, Palace, Mini Train etc. During the whole trip Vivan was very cheerful with two other children. There were no ill effects on his health during the entire tour. He now babbles a lot and moves forward by lifting the buttocks. He was extremely cheerful when we had been to a 3D show lasting about 20 minute and he was shouting a lot with cheers as if he was in a fairyland or in ecstasy.
    • He has become stronger than earlier.
    • He is doing Namaz to Kneeling very well, though he needs little support. He tries to maintain his body in kneeling position near window. He takes support on the window pane.

    He was extremely cheerful when we had been to a 3D show lasting about 20 minute and he was shouting a lot with cheers as if he was in a fairyland or in ecstasy

  • Jul - Dec

    Visible Progress

    • He tries to converse a lot as if he wants to say so many things. He speaks pappa, pappa continuously. At time he looks at Janak and says pappa.
    • In sitting position, he moves very fast now. He changes his direction by moving his legs.
    • He tries to lift his body from sleeping to sitting position. He succeeds in doing so with somebody's support.
    • His understanding seems improved.
    • Now he comes on the elbow and tries to move ahead. His sitting posture is improved. At times he makes his back straight.

    He tries to lift his body from sleeping to sitting position. He succeeds in doing so with somebody's support.

2012

  • Jan - Jul

    Visible Progress

    • Nowadays he starts crying suddenly as if he is having some pain. Earlier he used to forget very quickly if something goes wrong. (If he got hurt or something). Now he keeps on crying for longer duration of time.
    • He keeps on thinking something.
    • He has also developed the sense of ill feeling and does a particular face as if he has felt ill and shows that he feels like crying.
    • He is moving in the whole house in sitting position.
    • He babbles a lot.
    • Vivan's back is more straight than earlier.
    • His thigh muscles and knees look stronger and developed.
    • He screams a lot and has become mischievous.
    • He moves around everywhere in the house. He opens the drawers and removes the things out.
    • He can manage his legs to come into kneeling position. He has done the same thing on the grill of our main door. Some kids were playing outside and vivan wanted to see them. He went near the door hold the grill and he stood on his knees for 3-4 seconds.
    • Now he never allows his head to bang on the floor. At times we feel that he is falling but he has good control on his head.
    • While doing activities, he picked up the correct thing for about 60-65%. His understanding is improved.
    • He claps his hands when we ask him to do that.
    • When we ask him to give a hi-five, he smiles and bangs his hand on our hand.
    • In exercise, he doesn't stand for longer duration of time.
    • He sits down slowly during standing.
    • We had been to play park. Once there Vivan took a ride on the horse, on the merry-go-round. He tried 2-3 different types of rides over there.
    • In standing, at times he is locking his left leg. So we have to tap on his knees. Standing capacity is increased. At times we can leave him alone on the walker, but we have to keep checking his position of legs (that he is not locking the feet).
    • It seems his understanding is improved a lot. Though he cannot express but we feel that he understands better.
    • His arms and shoulder muscles are improved. He takes good weight on his hands. At times, he stays independently while taking weight on the hands.
    • He tries to communicate also. He tries to talk by using different sounds.

    His arms and shoulder muscles are improved. He takes good weight on his hands. At times, he stays independently while taking weight on the hands.

  • Jul - Dec

    • He is able to stand in the corner with support.
    • He is now able to stand erect with little support at the pelvis.
    • From Hanuman posture he gets up to reach to the toys.
    • He can stand for longer duration holding any tube or cloth which is hanging.
    • While sitting, the shape of his back is straighter.
    • From Namaaz posture, he tries to come on the knee with the support of the window.
    • He is screaming loudly to attract attention of family members.
    • He has become more focused.  Whatever he wants he tries hard to reach to the object.
    • He remains active all the time doing something or the other.
    • His understanding has improved a lot.  Now when I get ready and pick up my purse, he makes gestures to let me know that he too wants to come along.
    • Now he quickly picks up the ball while bending.
    • Now he concentrates and looks down into the tablet to see the nursery rhymes.
    • In Buddha posture on ball, he is performing very well.
    • His thigh muscles have improved.
    • He does drool a lot when exercising, but when he is sitting idle or watching TV, he doesn’t drool anymore.
    • His concentration has improved and he now watches educational CDs with more interest.
    • His eye contact has improved. 
    • In dog to cobra posture, when we tickle him to come into dog posture, we can see action happening at his gluteal muscles.

2013

  • Jan - Mar

    • He is making loud noise when he is happy.
    • Now he is babbling meaningful small words like pa-pa, pi-pi and he speaks clear.
    • He now stands for fraction of seconds by himself when he is unaware that we are not holding him.
    • Vivan is holding grill of the door and comes on his knees faster than earlier.
    • Nowadays he looks more upwards and tries to maintain his posture erect; previously he used to constantly look down at the floor.
    • Vivan is very cheerful at school. 
    • Vivan had sports day in his school in the month of February. He won 1st prize in two competitions.  Competition was to throw the ball, blast the balloon and water play.  We were so delighted.  Until last year, he could not concentrate at anything, be it game or studies.  This year he won a prize for us.  We are very happy.
    • His body looks more muscular now.  All his muscles are developing.
    • He is trying to maintain erect posture while sitting and standing.

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