Hetal's History

HETAL; daughter of Deepika and Sagar Nersekar, was born on 7th June 2008 at Noble Hospital, Ghatkopar (West), Mumbai

The delivery was Caesarean and Hetal was premature baby born at 32 weeks.  She cried immediately after the birth and her weight was 2.18 kg at the time of birth.  After delivery she was transferred to N.I.C.U. for 7 days. On the very next day of her birth she got convulsion. According to the doctors she had convulsion because of low calcium.

Our Pediatrician did not tell us about her convulsion problem.  Till her age of 6 to 7 months we thought that Hetal is a normal child like others.  Untill 7 months she was not holding her head.   During a routine checkup at Doctor observed Hetal’s development was not like a normal child.  He suggested us to go to Physiotherapist. We did physiotherapy for 7 to 8 months.  But Hetal’s improvement was not satisfactory.  Therefore we took a second opinion of a child specialist at Dadar.   He suggested us to do M.R.I. , BERA and consult to eye Specialist.  

We did M.R.I. at P.H. Medical Centre at Santacruz and B.E.R.A. at Wadia Hospital.  At that time Hetal was 10 months old baby.  B.E.R.A. test report was normal.  M.R.I. test report showed Thinning of the corpus callosum is seen.   Periventricular Hyperintensities in the fronto-parietal and parieto-occipital white matter regions and peritrigonal regions with paucity of white matter. Findings are representing sequelae of perinatal hypoxic ischaemic insult.

We showed the report to the doctor who told us that Hetal has delayed Milestones.  We have to do physiotherapy regularly.   He told us that her walking might be different from normal child. He also told us that you don’t expect from her to be an extraordinary girl like doctor, Engineer or Lawyer.   There we lost our hopes and started worrying about Hetal’s future.  We went into depression and all the time we were worrying about Hetal.

We then went to Neurosurgeon as suggested by pediatrician.   She said that Hetal has Spasticity.  For that she suggested regular physiotherapy and Pacitane and Lioresal tablets.  We saw little change in Hetal with this. She gave reference of Eye specialist (child).  He told us that Hetal can’t see with her left eye.  We have to operate on her.  That too was hard for us to bear; again we got depressed.   We then took another consultation of Eye Surgeon at Ghatkopar - East.  He told us that Hetal had good vision but has a squint in her right eye.   We have to put glasses but at that time Hetal was very small hence he suggested us to come after some months.   When he told us that Hetal has good vision and can see with both eyes quite well, we were glad to hear that.

One of our family friends suggested us to give Hetal acupuncture treatment. As per his advice, we gave Hetal acupuncture treatment for 7 to 8 months.  Acupuncture specialist told us that we don’t need to go to physiotherapy and accordingly we stopped physiotherapy treatment for 7 months.   But with only acupuncture treatment we could see no improvement in Hetal; instead her stiffness increased.  Thereafter we stopped acupuncture treatment.We were mentally, physically and financially very much disturbed. During this period Hetal was around 2.5 yrs to 3 yrs. 

We had also given her an ayurvedic tablets for 1 and ½ year.   There was some improvement in her constipation problem, but otherwise no global improvement was seen.  Then we stopped giving her ayurvedic  tablets also.

In 2010 on television, we saw an interview of a doctor on E tv Marathi about stem cell. We took an appointment of the doctor, who told us that stemcell will bring lot of improvement in Hetal. He also told us that she will start crawling after three months, and by 6 to 12 months she will start walking.Hence after much consideration we decided to give stem cell therapy though it is very very costly and was not affordable for us yet we gave her stem cell therapy for we felt that it will change our child’s life. After giving stem cell therapy we didn't notice any improvement in Hetal what doctor had told us before giving the stem cell injection. We could notice only her features were changed,stiffness wasreduced and there was some intellectual improvement in our wishful thinking about our child. The total cost of stem cell therapy was 4.80 Lakhs.

Our earlier physiotherapist had told us to consult with an eye surgeon and also with Orthopedist. We took an appointment to meet the eye specialist once again.  She told us that Hetal has a squint in her right eye due to which her visibility is very week.She told us that operation is required and the total cost would be around 70 to 80 thousand. We then went to orthopedic doctor who told us that Hetal needs Botox which will reduce her muscle stiffness. The total cost of Botox injection was 50 thousand. We told both the doctors that we require some time to arrange the money.

Then we again started physiotherapy at Ghatkopar. We started taking Hetal daily for exercise. Doctor used to give Physiotherapy as well as occupational therapy to her but the progress was very slow and not as per our expectations.  But as days were passing we were losing our hopes and we started thinking negative about Hetal’s progress because Hetal was growing.

During that period in the month of August 2012, one of our relatives told us about Dr. Rajul Vasa as he had read an article in the newspaper about the CP children. He told us to go and meet Dr. Rajul Vasa and consult about Hetal. We went to meet Dr. Rajul Vasa and told history of Hetal, we also told doctor about opinions of the eye specialist and the orthopedic doctor. After examining Hetal, Dr. Rajul Vasa asked us to concentrate on exercise which she tells us. After meeting Dr. Rajul Vasa rays of hopes arose in our life.  We saw the way she was working on other children at the center, we spoke to the parents of CP children and started thinking positively.  Dr. Rajul Vasa’s exercises are very different from our earlier exercises which we used to give to Hetal at home.  Earlier we used to give exercises to Hetal which were very much passive in nature. Passive means more of our exercise and less of Hetal, we were protecting her and supporting her like our previous physiotherapists did, due to which her improvement was also very slow. 

Before meeting Dr. Vasa we were not so confident about Hetal.  We thought Hetal will never be independent in her lifetime and she has to depend on us for all her activities of daily living but Dr. Vasa has changed our views.  She is so positive about Hetal that she told us Hetal has great potential but she also told us that we need to work long hours with child each day. Now we feel that there is a God who takes care of every one.

We started Dr. Rajul Vasa’s treatment from October, 2012 and with her unique treatment we saw lot of improvement in our child.  Hetal’s stiffness has reduced a lot without any antispastic drugs.  Earlier her speech was not clear.  Now there is lot of improvement in her speech. Her interaction with others has also improved. Now she recognizes pictures of fruits, animals, colors, vegetables, shapes etc.  She likes to watch Chhota Bhim, Swami Smarth C.D.’s   Dr. Rajul Vasa is not only treating our child but also has changed our views about Hetal.  Dr. Vasa started Hetal on a healthy diet due to which we saw change in her memory and improved digestion. Another big achievement that I would like to mention is we were forcing Hetal to crawl at home but she never crawled. When we went to Prempuri on 27th Jan, for the first time in her life she started crawling by herself. Our eyes could not believe, Hetal crawled to go to other kids. Now we are for sure that Dr. Vasa’s exercises are much better than any other therapy. We are very happy now,this is only because of Dr. Rajul Vasa. We are thankful to Dr. Vasa.

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